Coordinating care for a child with a rare diseaseToday is International Rare Disease Day and what I want to share with you is what having a rare disease means to our family, and how it…Feb 28, 2021Feb 28, 2021
The long path to meaningful changeMaking actual change can be such a long and hard process. I want to share with you my story in advocating for my son’s inclusion at school.Dec 2, 2020Dec 2, 2020
